
Thursday, April 30, 2009
FROM AWAY FARM MYSTERY

money-grubber gourmet!

To make this fun, you can donate some money to the Whole Foods fund that Katherine and team have set up for the Priorelli-Murdoch household and then post a recipe for a healthful meal that they can go out and shop for! To remind everyone of the restrictions to her diet that she in place I am including her description of daily meals below, but I am sure we all have a recipe that includes chicken, fish, legumes or veggies or do some research online for quick and healthy meals and send it along! I will be sending a soup recipe when I get home tonight!
From an earlier post of Alessandra's:
Speaking of food, I have been asked about my new diet a lot, which I believe to be as crucial to my recovery as my chemo. Basically, I have completely eliminated dairy - I have soy milk (unsweetened) or rice milk in my cereal, and have been advised to try almond milk too as an alternative. All are acquired tastes, but not bad at all. Butter is now soy butter, cheese (my beloved cheese) is out. I have also eliminated refined sugar - the only sugar I have is in the form of fruit, or the occasional Manuka honey. Anything that lists sugar as an ingredient is a no go area right now, as cancer cells thrive on sugar, and so the f***ker is being starved. Another area that has been eliminated is red meat. So, I eat a lot of fish, and a lot of vegetarian dishes, with the occasional chicken or duck. I eat a huge amount of berries every day - blueberries, raspberries, strawberries... all of whose compounds are reported to make cancer cells commit suicide. My breakfasts are usually a cup of hot water and lemon, some green tea, followed by toast (spelt bread), a cup of organic muesli, and a banana. My mid morning snack is a home-made, freshly-made juice of carrots, broccoli, beetroot, and apple (sometimes I add celery and cucumber). Lunch is raw vegetables mostly - a salad of mixed greens, spinach leaves, red cabbage, tomatoes, avocadoes and mixed grains (quinoa, kidney beans, spelt, barley), and hummus and spelt bread. I sometimes have freshly made miso soup, or an egg or tofu omelette. Mid afternoon snack is again a freshly made vegetable juice (the "superfood" of my nutrition) and nuts (walnuts, almonds) and dried figs. Dinner is usually a concoction of roasted and/or steamed vegetables, curries, pulses, soups, fish/chicken, pasta.... I drink a ton of green tea, and I also have noni juice and aloe vera. My body has never been this healthy when it comes to nutrition. I am giving this my all. And I cannot begin to thank so many of you who I know have made this all the more possible by helping me get all of this organic goodness from Wholefoods.
So whenever you want to "send a treat" to Alessandra and her family, feel free to log onto this site and donate. http://supportforalessandra.homestead.com/ If you want Alessandra to get a note with the donation, you can do that on the site next to where you enter the donation amount.
While your at it you can also make a contribution to the fight against breast cancer and help Vicki achieve her goal of raising money while running to support Alessandra in a 10k road race around London! Auntie, I wish I had a "10k time" to beat, but alas each run leaves me happy that I went out and gave it my all, but for kicks try to break 1:20?! www.justgiving.com/victoriapriorelli

Wednesday, April 29, 2009
YOU ARE MY HERO!

Update.
A quick update, having just come home from the hospital and having had Round #7 of chemo. Saw Dr. Plowman who has scheduled me for CT and Bone Scans on Monday 18th. The plan is to stick with these three week chemo cycles, but instead of my current big hit of I.V. adjuvant chemo one day every 21 days, I will be switched to a different oral protocol, which I will take in tablet form for 14 consecutive days, followed by a one week break. So, I will start that new set of cycles on Wednesday 20th, keeping to my three-week regimen. Regardless of what the scans show, I will be on that new chemo treatment - what will be up for discussion is how long for, but I predict at least 4 to 6 cycles. Surgery is off the table for now, as the push continues to be to eradicate the metastasis and to shrink everything as much as possible. He checked my boob and confirmed that that continues to shrink nicely, while the damn lymph node seems to be resisting the full effects of treatment. Based on the scan results, Dr. Plowman may want to combine my chemo with radiotherapy to the node. So, I just need to focus on having this last round do its work to the best of its ability, visualise like never before, and say my prayers as we count down to the scans this coming month.
Must go and lie down, and get prepped for the next few days of "hibernation", as I feel the beginnings of the side effects. But I will keep you posted as always. Hugs!
Running For Life
Danda just completed round #7 today and that in and of itself is harder than an Iron Man - a milestone! She is a star!
Love to all of you who write on or read this blog.
Tuesday, April 28, 2009
Goodnight Alex
Positive thoughts and extra fighting energy will be coming your way all day tomorrow. You are in my thoughts every minute!
Love
Lisa
deep breaths!

I wish I could write more, but am at work. I wanted to at least wish you all my best for you round 7 and meeting with Dr. Plowman. I can only hope the man with the magic eyes gives you the "medical boost" you need. We are all with you holding your hand and breathing long deep breaths with you. You've got this one kid-you are strong under all those tears. Believe that your body is healing itself-keep positive!
When mom arrives I will task her with being the portrait taker of you and James. I think she will enjoy the challenge!
Hugs and more hugs to you. You are beautiful and so very brave!That little boy has a lot to be proud of because his mom is a fighter!
Remember you've got nanny on your side as well, I believe she is in those wind blown clouds in the blue sky looking out for us all!
Lex
Believe!

On my desk, in my office, I have a beautiful silver casting of the word "BELIEVE". Behind this word is a willow tree angel. It is the angel of courage. She is standing with her arms outstretched over her head in a show of victory. Alex, this is the same angel I bought you when you got your apartment in Weston. At the time, I didn't pay attention to her title of the 'angel of courage'. I viewed her as a woman, triumpantly raising her arms in celebration of her achievement.
The word "believe" has become my credo for this year. It makes sense in so many ways in my life. I believe I can save money, I believe I can lose weight, I believe I will meet the man of my dreams, and on a larger scale....I believe in magic! As adults, we often lose our belief in the magic that occurs in our lives every day. Alex, as round number 7 comes around, I hope you will believe in the magic of your body to heal itself and know that you are like this angel (I hope you still have her). You have been so courageous and as this round comes and goes, you can raise your arms in pride that you have continued this battle with such grace.
I will be thinking of you over the next week as you feel the effects of the treatment and I will think of you especially as I look at my desk top angel and hope you might look at your same one and believe as I do in the magic that is possible.
Love you tons,
Mary
Here We Go Again...





You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.
The best way out is always through.
Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow.
Fear grows in darkness; if you think there's a bogeyman around, turn on the light.
Aslan:
Thomas Carlyle:
Round 7...?
Dear Panda,
Is Round 7 coming up tomorrow? It's marked for tomorrow on my calendar, but the blog has been so quiet lately that I am not so sure now. I'll think of you in any case, it can't hurt! I'm sure you feel stronger and so much better, after a few good days. You so deserved good days! It was nice to see your pictures from the weekend (thanks Sally for posting them). James was more cute than ever, caught by the flash of the camera like a deer in the headlights :)
I'm posting here a photo of "my" bike path on the way to work that I had the chance to take in the weekend. No, I didn't go to work, Uri and I went on a long bike ride and passed the point where we usually get off the bike path to get to our building. What you see in the picture is the valley as it looks looking back (that is, as it looks when we go back home from work). Nice, isn't it? These bike rides are the highlights of my days. The plants on the left are some of the apple trees (well, bushes) I was talking about a few days ago. As you can see, they don't have any flowers left!
In any case, just wanted to show you how my valley looks after a few days of rain. Green green green and more green. We are under the rain again, but we're expecting the sun by the end of this week. So, you see, there are silver linings under stormy clouds, and bright blue beautiful skies as soon as the clouds lift--and they do lift!
A big hug for tomorrow.
Monday, April 27, 2009
out of site, but not out of mind
I am so sorry to have been absent from the blog as of late. Work had me overwhelmed and I had to dig into training a bit more which has left me exhausted. I haven't even had a minute to read the blog let alone post which has been sad. Tonight I will make my big come back to the blog! I hope this letter finds you well. Quickly saw some pics of you on the site and you look beautiful!
Your followers have been growing as I have just sent out blog instructions to two more people! Below are the words of Pat Webb, who used to live across the street from mom and dad in maine, if you will remember. She asked that I post these words in case she was unable to get on the blog herself so I leave you wither her story.
XOXO and a BIG Hug,
Lex
Hi Alexis,
Your Mom sent me an e-mail with Alessandra's blog address.....Hopefully I will be able to get to it. But in the mean time I would love to send her a message of hope. I was diagnosed with breast cancer almost 32 years ago....and am still here !!! At the age of 32...with two little girls. Holly was 8 1/2 and Bess just turned 7 ! I was faced with the fact that I might not see them grow up.....My stubborn Yankee heritage kicked in and here I still am....No one else was going to raise my daughters......Danda has to do the same.....She has to fight for not only her life but that of Julian and their son......It is a tough scary road.....and will always be. But believe me if I can do it so can she !!!! She has her whole life ahead of her plus people who love her dearly !!!! I never had that kind of love and support....But over the years have had wonderful friends who have been there for me. Your parents among them....Tell her I am thinking of her.....Pat Webb
We Were Born to Boogie!
Friday, April 24, 2009

Thursday, April 23, 2009
Feeling WELL!!
Let me change the subject a little: That picture of James is so cute! I love him when he sits up like that, with his back straight and his hands on his feet. He started to look like you! Can you see it? (I sound like an old aunt, "He looks like Julian, no, he looks like you, no, he looks like Julian, no, like you...").
I've downloaded this last picture and the one you took in March (where James sits in the same position) and switched back and forth between them a few times. He grew up! This new one is now my favorite: he looks too handsome in blue.
OK, back to work. Have a beautiful day!
Gratitude.

Wednesday, April 22, 2009
Its Raining in Philly
I loved the photos, the sincerity and strength in your last post, and especially seeing your boys and yourself enjoying the (summer, ha, ha!) sunshine. It makes me want to hop on a plane and stroll through Holland Park with all of you. It also helps me put my own niggling little worries and daily grind into perspective and see them as what they are - just pebbles along life's path. I don't have any stunning, or even simple quotes or images to send you today. Just wanted to say I check on you often, and will keep on doing so until we all gather to celebrate your complete recovery. In the meantime, I'll keep marching in step with the rest of this army of Danda's friends.
Besos, Nora
Feeling fine
Very nice to see you smiling and out in the sun! Even better is reading that you are feeling fine! What a wonderful word "fine", such a simple, humble word, and it means so much. It seems so easy to be "fine", yet it can take so much work. I realize that your feeling fine is an unstable state, that can change anytime and there are always worries in the background, BUT you are feeling better, you got a break--and I'm sure this will recharge you so much in so little time!
This great news will get my good mood going at least until the end of the week :) I'm sure you'll take advantage of these good days to be outside in the sunny spring London is blessing you with. On a side note: the photo of James and Julian is so nice. James looks so much like Julian, he's so cute--and handsome, of course, like his father :)
A hug.
Tuesday, April 21, 2009
Thoughts Before Bed.





Since my last post, I have had a series of mostly good days. Admittedly, despite a Round #6 which I believe to have won, the side effects still lingered for many days, coming in waves. It plays with your mind; one day you begin to feel better and think, "Great, the cloud is lifting, we're coming out of the tunnel", and the next you wake with nausea, aches and a general feeling of malaise and think, "I feel worse than yesterday...when will this ease up?" I guess that I still have not come to fully accept the ebb and flow, or the rollercoaster as I call it, that characterises this process and which reminds me, time and time again, that I should not predict, that I should not assume, that I should not expect. On Friday, for example, I took an unexpected nose dive. I got up feeling awful - mouth ulcers, nausea, deep fatigue, again that "unplugged" feeling, and very, very emotional. From one day to the next, boom! All day, I could not come out of it, and by the evening, I was not in good spirits. Chiara says that on those bad mid-cycle days, she can just tell the effects of chemo not only on my body, but on my personality - I am quiet, "absent", distant, closed, tearful... The next morning, my body felt completely different: it felt "normal" and energetic; my mind also felt completely different: it felt "lighter" and positive. It is scary how the rollercoaster can dip and soar so radically.
In that same vein, for the past couple of days, I have felt really, really well - I have not felt this fine in months, to be honest. Were it not for sensing the presence of my hard lymph node under my right armpit, and for the bald head that stares back at me in the mirror, I would think myself to be perfectly healthy. Oh, the lymph node, the damn lymph node.... it is my daily worry, admittedly, as my family can attest. Dr. Plowman assured me that it can do me no harm while having chemo, that it cannot spread its cells, and I do believe him. But it just isn't shrinking as one would hope, and that bothers the hell out of me. I know that the plan is to remove it eventually, so why should I care what it does, if it can't hurt me? Because I want it to respond better to treatment, because I see it as part of the cancer as a whole, as my visible indicator of my recovery. I tell myself that I give it too much importance - I know I give it too much weight. The tumor in my bosom, in contrast, has shrunk so dramatically. And that is how this cancer plays with my mind: the bosom shrinks majorly, the lymph node does not... aren't they one and the same cancer? And with that contrast, how can one imagine what is happening in my liver and bones...? But I stay positive, and focus my energies on the fact that my body is strong. And, similarly, I choose to believe that my body is focusing on what it needs to work on most and best, and that it knows what it is doing. And I believe that it is doing a fabulous job in this battle. But, I admit, that as I go about my day, the little ball under my arm pit that is my sick lymph node provides me with unwanted, constant, niggling reminders that, even on the best of my "well" days, I must never, for a minute, stop fighting. And I will win this fight. I am winning this fight. I focus, I visualise, I hope, and I fight, fight, fight.
And talking about being positive, and as I said earlier, I have had several days of feeling particularly well, and therefore I was able to enjoy being outdoors in the sunny weather that has finally graced London. So, on the theme of Spring that has been part of the last few posts on this blog, I have attached some pictures of Spring in my neck of the woods - these were taken on my walks through Holland Park this past weekend. It is a lovely park that is just a few minutes from my home. Spring has finally sprung, and it was wonderful to breathe the fresh air, feel the sun on my face, and see life in its many beautiful forms. And my body felt good. It belonged in the midst of all of that "life". I hope to take many more walks and spend more time outdoors, before Round #7 next week. It is good for the soul.
Good night to all, and love as always.
Apple trees

Hi Panda,
Since last week I wanted to take a picture of the valley where I bike to go to work, just to show you the lines of apple trees in blossom all around the dike where the bike path runs. It was so beautiful last Thursday (last time I had the chance to bike), but I didn't have my camera with me and couldn't take a picture. This morning, when I came to work (by car) I could see from afar that the trees are now full of leaves and are starting to lose their flowers. What a pity! They are still beautiful, but they are losing that wonderful Spring touch that I wanted to share with you. Spring is moving so fast here. Considering that we've been under the rain since Friday, but with mild temperatures, you can imagine how fast the valley and the mountains around are becoming all green. I dedicate to you the happiness that this spectacular blooming of life gives me and I wish you to be able to feel the rejuvenating power of spring in your mind and body. I send you a picture of an apple tree in bloom that I downloaded off the internet. As soon as I get the chance to bike again, I'll send you "my" apple trees, if they are not past the spring phase and are already celebrating summer! A big hug.
Sunday, April 19, 2009
Good Night My Friend
I am hoping that this week allows for quiet mornings with James and relief from the side effects. Your body is amazingly strong. You are amazingly strong.
Thank you for the updates.
Hugs,
Lisa H
We like to call this "connecting the dots!"

Good morning from sunny Sausalito, CA! What a glorious day it is here. Ironically I leave our blinds open on the weekends probably much to Jeff's dismay, but he seems to have adjusted as he is able to sleep right through the sunshine. Most people look at the weekend as their time to shut the world out and sleep in; I am quite the opposite. I leave the blinds open so the sun awakens me and I have the chance to look out the windows at first light and welcome the day. This morning was no exception. Clear blue skies had me up at the moment I opened my eyes. I guess I just don't want to waste a minute of the two days of freedom I am granted every week! The trials of the working class! ha!
Danda, I hope you were able to greet your day with blue skies in your mind and soul! I only wish you blue skies on your gray days!
As Giovanna put it in her last post, your fan base is growing! Since this is the case I thought I would take out a personal ad on you blog for all those looking for a companion.
DSSS- Desperately Seeking Stalwart Soldiers
Blogger aficionado seeks soldiers for war against cancer. Must be willing to share the battlefield with 32 to followers and countless additional snipers around the globe. Must possess positive attitude and willingness to wage war in the form of morale boosting blog posts, humorous anecdotal stories and photos/videos as a window to the outside world when low white blood cell counts keep the General (Danda, that is you!) indoors. If you are up for the challenge please email alexisrobinusvi@yahoo.com with exuberance and in turn you will be added to the blog roster and further instructions will follow.
Danda, all my best to you, James, Julian, Chiara, Anthony, Mum and Babbo-your soldiers on the front line!!
XOXO
Lex
Saturday, April 18, 2009
James' fan club
James is eight months old! Time surely passes quickly. And he's such a big boy, with his 98 percentile for height and 90 for weight! You and Julian must be proud of the good work you're doing with him!
Last week, I left the blog open on my computer in the office on my favorite picture of James (James and Joy) and when the receptionist from downstairs stepped in to bring mail, she happened to see it. She was mesmerized! She told me she had never seen such a beautiful baby and asked who he was. I told her she was looking at my nephew. It felt really good to say "my nephew", as if I had any doing in his existence and magnificent looks! Then she asked about his parents (she caught on that I can't take credit here!), I showed her your picture at the top of the blog ("what a beautiful cousin you have!") and one of Julian (the one that Eve posted some time ago). Her comment was, "He's handsome too!" with a tone that implied, "With such parents, no wonder he's such an amazing baby!". Then she asked to see more pictures of James, so I browsed the blog and showed her some more pictures, in particular my second favorite (James March 2009) and she was even more fascinated. One of these days I'll show her the giggling video, I'm sure she'll love it. Tell James that his fan club in Italy is growing!
On a different note, I liked the feel your last posts gave. I monitor the way you feel through your blog posts (like a "mood thermometer") and, as you know, mood is contagious. When I sense strength, determination, courage, some peace of mind in your words, I'm really happy for you and feel better at least the whole day I catch the post. Keep up the good work!
Hugs.
Friday, April 17, 2009
breaking the ice!

That same weekend I had my first swim in San Francisco Bay! I coaxed Jeff to come with. Of course he was getting over a cough so I felt badly asking him to come, but he seemed to be up for the challenge. I made him tea in a thermos so he could sip it to keep warm while I paddled from buoy to buoy. Of course it is not enough that I was jumping the in the Bay for the first time, I had to bike over the bridge to complicate matters! We biked over in the traffic of tourists crossing the bridge along with gusts that would cause you to stand still as you weaved around the pylons.
As we neared Aquatic Park I kept telling Jeff I thought this whole thing was a bad idea. It was cool, very breezy and if I was too cold when I got out of the water we would have to bike home. Playing the coach role he kept telling me it would be fine and we were not turning around. I needed that because I was really feeling like I should have brought my wetsuit. It is like a safety blanket! I never end up wearing it, but it is there just in case. But think about it, am I really ever going to get out of the water and try to stuff my wet self into neoprene?! Let's be realistic!
We arrived, I stripped down right as a team of Team in Training triathletes were coming out of the water all talking about how cold it was-must have been their first swim in the Bay based on their reactions. And without another thought I put my caps on and walked determined to the water like I did this all the time. With tourists snapping pictures I just walked in the water and thought to myself have I lost my mind?! Do I usually wear a wetsuit this early in the season?! What the heck am I doing, I am never going to make it to the first buoy and before you know it I was there (head still above water mind you). As I treaded water to get my bearings an older woman-let's say in her 70's elegantly breast stroked past me with her flowered swim cap-I might be making the flowered swim cap part up, but my body was in a state of shock so I was not in my right mind. I gurgled out to her, " Am I going to be ok?! Am I going to warm up?" Politely she replied, "You'll be fine. Start swimming." "Right." and down my head until my whole body was submerged in the icy waters. I spent the first five minutes fighting with my goggles as I tried to create a good suction as I knew I would never endure the swim with leaky goggles. Finally goggles were on and I was swimming.
Took me quite some time to settle into my rhythm, but I got there and it was great. It was windy that day so the rippled water broke over by arm as I stroked hard to keep on course. I call days like those washing machine days because I swear that is what it would feel like if you were on permanent press in the washing machine. Lots of bubbles and turbulence.
Despite everything I managed to swim the requisite mile and half in 45 minutes...just in time to get out before hypothermia set in! Chattering teeth and stumps for feet I mounted my bike and Jeff and I rode home! One step closer to the main event!
Wednesday, April 15, 2009
Morning Check-In
Today, James turns 8 months old - he is definitely crossing the invisible line that marks the transition from baby to boy. He was taken to the baby clinic last week by my mother, where she was told that he ranks at the 98th percentile for height and 90th percentile for weight! I have myself a little giant! Hard to believe that this was the skinny little infant who suffered severe reflux for weeks on end, braved an emergency ambulance ride after he stopped breathing, spent much of his first month in and out of the hospital, and pushed through hours of pain in his determination to drink his mother's milk. It is amazing what time can do, and how the body can not only heal but flourish. He is providing me with my own little role model, paving the perspective for my own recovery... His journey is my positive lesson for the day.
So, he and I are sitting here, watching Bob the Builder on the BBC, in the quiet of the early morning - he has had his porridge and milk, I have had my supplements and chai tea, while Julian is still asleep, having taken on the responsibility of the usual tiring late night feed that allows me to go to bed earlier, by 9pm. I am feeling OK, but still far from 100% - yesterday I took a big dip (seems to happen at this point in every cycle) where the nausea returned for a while, and my body felt suddenly very depleted again (that unplugged sensation) - it's those very low blood cell counts making themselves felt, not to mention the impact of the bone marrow boosting shots I have to take every day, and by the afternoon I really couldn't have walked for more than a block. So I rested, and today will be more of the same. I feel the beginnings of the chemo side effects on my mood, but I am more prepared this time around to handle it, and to not let it scare me. I long to be able to do more exercise, to be more active, get those endorphins going, but I need to be patient (not my forte!) - I have to wait until I finish this intensive chemo phase, and see how the tablets/injections impact my sense of deep fatigue. My body at the moment is simply focusing on staying as strong as it can. So the goal remains to keep the mind active "in the moment". Not a small feat! Just "being" is truly an art form!
Hope you all have a good start to your days. The BBC headlines are on - James and I always watch them, sharing in conversation on current events.... his views are less clear, but I swear he has an opinion... Hugs.
Tuesday, April 14, 2009
Got to watch the video of James in his bath. The repition of laughter is enough to draw anyone out of bed. I am so glad he is happy and in turn that makes you happy!
Much Love,
Lex
Another Round Down
I am sure that I am not alone in the sense of relief I felt when I read your last update. I am glad that the "darker" days of Round 6 are behind you and hope that the sun is starting to shine on your side of the pond as it is here in San Francisco. This really is like a marathon, with all the emotional, psychological, and physical aspects of the most difficult of courses (perhaps with some extra steep curves and hills). Unfortunately, you did not get to pick the date, select the location, shop for just the right shoes, or even train for months with a team of experts. In fact, you just had to start running, trusting that you could endure all the miles ahead, that you had the right gear, and the right support crew. Not only are you keeping the right pace, you are inspiring lots of people along the way and reminding us that there is so much life to live even in the darkest of moments. For now - I hope you get a moment to rest your feet and cruise for a bit. I love you very much
Lisa H
Childhood Memories
So I said I would tell you a few tales about our charmed childhoods in West Hartford—mine, your mother’s, and Lisa’s. The others were there too, but way in the background. Sorry, Geoff. You play a very important part in the Concord phase.
Memory #1: turning on “The Nutcracker Suite” on the record player, holding onto the barre that ran around the huge attic dance studio, pointing our toes as much as possible, and posturing as ballerinas, sometimes mincing, other times hurling ourselves around the room like whirling dervishes. It felt so “professional.” George Ballanchine, aren’t you sorry you missed it?
Memory #2: the “slide” in the yard and the terror it engendered in me. Two parallel inclined metal poles about a foot apart or maybe closer but it felt like a foot: our legs straddled the poles with our little bottoms in the gap between (never in a skirt, mind you) and “let ‘er rip!” I always worried I’d fall in between the poles onto my back and be a quadripelegic; I was scared of the “exercise” yet scared of being labeled a sissy if I refused to “slide.” So much ambivalence at such an early age (8-11)!
Memory #3: We had dogs at our house; your mother’s family had at least one cat (maybe dogs too? I have a vague sense of a Great Dane in there somewhere…). Dogs were familiar; cats were mysterious and unpredictable. We went to see the movie “King Solomon’s Mines,” and I came back for a sleepover with a head swimming with macabre images of African caves and wild animals. In the middle of the night, the cat jumped up and landed on top of me. I must have shot up out of my covers like a rocket, screaming about the tiger that was attacking me and calling for Aunt Bessie to come save me.
Last memory: a Halloween at the Smith’s. Lots of grisly sensations like slimy grape eye-balls and cold spaghetti entrails, but the most terrifying moment was opening the basement utility closet door and having Uncle Rob lurch out as the ghost of Oglethorpe. Hunhh? Where did that come from? Forever in my mind the two of them are paired, even though I have long since forgotten how he looked or what he did. Lisa, did that happen?
OK so the first memory is benign, but the other three are fraught with fear. Why the attraction to this house of horrors and the people in it, you might ask? Because it was “different” there, so exciting, a test of my courage, a test of my flexibility, lots of laughter after the heart-pounding moments, spacious high-ceilinged rooms, style in the furnishings and the art work, and the fun of childhood with my cousins before we became scattered to other places.
To compare the foregoing to your predicament is too far-fetched. However, what you are going through is so scary, so heart-stopping, as chilling as being trapped in a cave with no way out. Your resolve, will power, courage, flexibility are all being tested to the max. But you continue to battle back and you WILL find your way to the sunlight and the freedom and you HAVE laughed at the sounds of your little one burbling in his bath. You have my dear cousins—one by your side and the other two metaphorically there sustaining you—and your own dear cousins and family members and friends all over the globe supporting you. We’re NOT going to let you fall through the gap.
I wrote this before your latest post. Now after reading it, Alessandra, I am positively exultant! Yippee!!! I even put on the “Hallelujah Chorus” in honor of you and Handel!!! I’m breathing normally again. Praise be to God and your mental audacity and chemistry and your doctor.
light, light, light everywhere!

Danda,
WAHOO!! HIGH FIVE!! BEAR HUG!!
I am certain that sweet relief is what we are feeling right now reading your words. Everyone keeps telling you to let go of your control, but I think you have found control in the most challenging of times and in just the right context. I am SO proud of you for engaging your mind and talking your body through the days after treatment. You felt empowered and that is huge! Recognize how amazing that feeling is to be in control of your mind and thus in control of your body.
I know it hurt as you said and was uncomfortable and you were weak and tired-this will not change given your course of treatment, but the fact that you can overcome tells me you have the fight still in you.
You are an inspiration, listen to that music and take yourself to that happy place! I can't wait to watch the little video of James tonight! Very impressed you got the video loaded on the blog-that is a first!
The painting above is currently on my desktop encouraging me as I prepared last weekend to jump into the Bay for my first open water swim of the season. More on that later. It now makes me think of you and how you must feel-pushing off the wall of the pool and swimming weightlessly to the surface for some air.
All my love,
Alexis
And One More Thing....
Dear All,
One more thing I forgot to say... in the darker Round #6 moments, there was nothing more morale boosting that playing this video in my head. This is of James taking a bath, with our wonderful nanny, Kelly. I know I am biased, but the giggle is just fabulous....
And We Have a Winner.
Monday, April 13, 2009
Imagery

Saturday, April 11, 2009
Howard's End

I think Mom might be on to something there! Danda, if ever there was someone to channel it is your grandmothers! Both alive and in heaven watching over you they are two of the strongest women I know. They are proof that your genes are strong and can endure! You can too for you are the grandmother we will all look out years from now and tell James' offspring what a fighter you are! Mary, I love that comic of the Easter bunny. Every year it comes around and every year I giggle just the same, I'd love to meet the artist! Nora, I think your supernova photo is miraculous. I think someone is trying to tell us something if the supernova kept popping up instead of the hummingbird! I love it! Danda, I know you are looking for something to take your mind far away from reality and I think Nora's suggestion of Three Cups of Tea is a brilliant one. It is an inspiring story to say the least! And if you want an endurance read (no pun intended!) Shackleton is just the thing. Our group leader on one of my Outward Bound trips used to read us passages from the novel at night at the end of a hard day when we all felt like giving up. Those passages sure did put us in our places as we crawled into our down LL Bean sleeping bags. I can't say I would have had the guts to skin a wild animal and sleep in its skin for warmth in the snow or maybe I would have! It is amazing what we will do when it is a matter of survival! Second cup of coffee. I cherish the mornings when everything is still quiet and peaceful so I will write some more as I sit looking out at Mount Tam in the distance on what will become a perfect blue sky day in Marin. Lisa, across the Bay in Alameda, knows what I am talking about! Vicki, this part of the post goes out to you because I know you can fully appreciate this experience. Yesterday afternoon on a crisp Spring afternoon I went for my usual run on what I call my Patagonia commercial run. Once up the hill from the main road the trail winds through a valley in the "V" of the landscape you hit Tennessee Valley Beach. If I could claim it as the 8th Natural Wonder of the World I would! I was determined this weekend to hit my requisite 8 mile mark for my triathlon so I planned to run to the beach and back and then head out on a three mile out and back once back on the main road. But I knew full well that the temptation to quit once my knees began to give out would be too great and I would head for home. So instead I ran back to the top of the hill and began the descent to the beach again. That would give me my extra three miles I needed and with the scenery the option was much more attractive. By this point I had hit my stride and legs loosened. I ran by a white haired man who in an English lilt said, "Wait a minute, I am not supposed to be passed by a girl." I laughed and slowed my cadence. He continued, "But I am 75 so I guess I can accept it." I laughed again and said, "You are a better runner than I if you are running at your age". He said, "Stick with it. Never give up running." I told him, "I already have knee aches and I am half your age. It would be a miracle if I am running at your age." The banter continued and I told him I would see him at the turnaround. He said, "I will wait for you to pass me." At the turnaround I saw him again. I headed to the beach and he headed up the hill I had just come down. "Shit," I thought to myself. He is going to run up that hi. Unbelievable! This is a man with a strong resolve! I ran quickly to the beach and turned around in hopes of catching up to my English compatriot. Around each bend I looked for him, but he was not in sight. Finally on the last long uphill straightaway I saw him, white baseball hat, blue sweatshirt-white polo shirt peeking out. I ran my hardest to try and catch him before the parking lot, but was unable to. Once at the top he stopped and turned, looking for me no doubt. I yelled out to him,"Boy, you don't give a girl much of a chance to catch up, let alone pass you." He said, "I kept waiting for you to run by." I stopped my run to introduce myself and tell him how impressive he was and that I could only hope to be running as strongly as he does at his age. He told me, if you don't slow down and take care of those knees you won't be. He said that he was concerned that I already had knee pain and then his age kicked in. He told me that my generation is so busy outdoing one another and overachieving that we burn out. He told me wouldn't you rather run three times a week for the rest of your life then run a couple of marathons and never be able to run again. I told him he was absolutely right. He sympathized, I know the will to want to run further and longer, it is an adrenaline high. He knew how hard it was to push through those miles and then look back and feel a sense of accomplishment. But he also said it is just as hard to hold yourself back and realize that running for the long haul is a lot more difficult both mentally and physically than cramming it all into one all out push. Endurance can mean so many things I thought! He ended our conversation asking, "What did Robert Bernard Shaw say?" Ummm, I thought, Robert Bernard Shaw, sounds like an adventurer, emmm, or maybe a writer, actor?! I must have looked dumbfounded! "Ahhh, yes...youth is wasted on the young." I laughed. Howard, was this angel's name. Howard is omnipotent! We shook hands and I told him I would run alongside him anytime and would look for him on my Friday runs in Tennessee Valley. I started back down the hill towards the main road and he honked and waved as he drove by. Talk about adding a spring to my step. Vicki, you are the family's Howard-take a run through Kensington Garden. Make it short and sweet and it will last forever! xoxo, Lex
Friday, April 10, 2009
ENDURANCE
